This is how the day would go (in my head)...
hang out in hospital room until Ava's discharge, have tearful goodbye with doctor's and nurses, head over to apartment, unpack, bring Audrey over to spend the night with me, have dinner together, have home nurses stop in to demonstrate Ava's TPN (nutrition), watch some tv with Audrey, cuddle and go to bed, wake up for a fun morning of watching the girls play together in our new home away from home...it would be so wonderful to have them together again!
This is how day went...
Spent day in hospital room with Drew and Ava, packing up and waiting for discharge stuff. We didn't have the key yet to the apartment, and knew that we had to be there by 4:00 for the delivery of her TPN (nutrition). You would think we could have gotten the key during the 6 hours of waiting for discharge. Anyway, we finally got her medications all filled and paperwork taken care of at 3:45, just in time to run like crazy people through the hospital, taking pictures along the way of Ava in her stroller, trying to get to our cars in the garage to drive to the place where we had to pick up the key so we could be there by 4:00!!!!! We had a chance to hug 1 nurse goodbye and the others just got a wave as we raced out of there, so much for the tearful goodbyes. By the way, Jenny our nurse who is so unbelievably wonderful was our nurse the day Ava was admitted, and she was our nurse the day of discharge...we thought this was so meaningful. I hope she knows how much we appreciate her even though we ran out so quick...Jenny if you read this, you are the best!!
Ok, moving on... we get to apartment, unload our cars full of everything in the world, Drew drives home to Owings Mills to get Audrey, I start unpacking and getting ready for nurses to come and hook Ava up to her nightly TPN. Meanwhile Ava is crying and begging for sleep, Im trying to hold her and set up her pack-n-play, its now going on 5:00 and our TPN hasn't arrived. The nurse calls and says the TPN has been delayed so they will be by around 7:00. Drew arrives with Audrey, she is cranky (go figure) from a nap in the car, she is hungry and the apartment is empty, Drew goes food shopping and leaves me with both my children, Audrey whines and mopes, Ava cries and I sweat. Nurses arrive at 8:00 with TPN!! Drew is home with groceries, nurses trying to go over paper work with me while drew unloads groceries and Audrey does gymnastics on couch yelling, "mom, watch", "mom, look". Its now going on 9 and no one has had dinner, nurses trying to show us Ava's TPN pump, lines, vitamins, injections, gloves, sterile this, sterile that...I thought I was going to faint. It was so overwhelming, they stayed till close to 10:00 and just kept reassuring me that it was always like this the first night and that in the morning when my head was clearer it will be easier...really? I don't remember what I ate, or if I ate, Drew left at 10:30 to go home and Ava went to sleep. Finally Audrey and I go to bed. Morning arrives, Audrey starts playing with Ava, laughing and coughing...yes, coughing!!! I call Drew freaking out, "Audrey's coughing, I cant believe this, she must have a cold, her nose looks runny...", Drew drives to Canton to pick her up and take her home. Poor Audrey cried, thinking I was mad or upset with her. I felt horrible, it was just so overwhelming. She had her hands all over Ava the night before, her toys and everything...I can't handle being in charge of Ava's immune system.
So for those of you who called, messaged, and texted...that was our transition. thank you.
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