Feeling pretty bummed tonight. We are definitely proceeding with the donor lymphocytes (from Audrey), and found out today that it may involve another chemo prep. Not a lot of chemo, but enough to suppress her so the donor lymphocytes take. Of course all this means even longer time away from home, Im not sure exactly how long but know it may be a month or more.  Basically, she is not holding onto her graft so we are hoping this lymphocyte treatment will turn it around. Im wishing things were different, but I also realize its not the worst case scenario. Im happy that she is feeling well, eating, and happy. Not sure when this will take place, I will find out more on Wednesday at her clinic appointment.
I have become friendly with another mama in clinic who's 5 yr old daughter is being treated for AML Leukemia. She also just had a bone marrow transplant, her oldest sister was her donor. This woman has like 8 kids or something.  She lives in New Jersey and is here with her 5 yr old for a long time. The saddest part is her youngest is 9 months old and is being taken care of by another family, she told me when she went to visit him after some time, he was reaching for the lady who cares for him...not his own mommy. This broke her heart and mine too, she says he doesn't know her as his mommy.  I promised I wouldn't complain after that, I only live 25 minutes away and get to see both of my children.
So, Im not gonna complain...not a lot anyway, maybe just a little. This sucks. Im sad and scared.
I know we will get through though, we really have no choice. Ava is so unbelievably delicious, and sweet...we will do whatever it takes.