For anyone who wants to check in on Ava, we thought this would be an easy way to tell her story...

Thursday, September 15, 2011

yum, yum, yum
I haven't written in a couple days, just because Im so overwhelmed. Ava is feeling good, and eating great!! That has been the best part of these past few days.  The worst part is this reddening of her skin that has me frantic. Bone marrow patients have a risk of developing GVHD, which I have explained before. There are two types, acute GVHD, and chronic GVHD. Signs that they look for start with a rash or reddening of the skin on the hands, feet, and face. With acute GVHD, its likely to happen within the first 3 months after transplant. Ava has red, blotchy skin on her hands and feet...Im so worried. She goes for her clinic appointment tomorrow morning, Im anxious for them to check her out.
Thats whats going on in my apartment, now in my other house, Im dealing with Audrey...
I went home last night to a mean, emotional, inconsolable 4 year old. I really had no patience last night, I had left here and sat in traffic for over an hour, got the kids, went home, and her drama started. She was a mess, crying and saying how everyone thinks she's mean and how I (meaning me) only want to stay with Ava. I really had nothing left to give. I cried, she cried, it was great. The boys were in the basement minding their own business, I may have seen them for 10 minutes last night. I should have stayed at the apartment, it was not a good night.
I just hung up with Drew who said Audrey was a pleasure tonight, for him. Of course she was.

1 comment:

  1. Will it help to know I have zero memory before six years old? Meaning Audrey is being put through her paces now and missing you but most likely won't remember a thing from this period of her life. I know you will but maybe not since you haven't slept or eaten in about four months. Thinking of you and wishing I could box up rest and overnight it. Mail me your laundry and dirty dishes? <3

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