Day 100!

Today marks the 100th day since Ava's bone marrow transplant! If all had gone as planned and she didn't need last weeks DLI, today would be considered a big day, but thats not the case. All it really marks is 100 days away from home (actually 104 days, because she was admitted 4 days before the transplant).
We learned nothing new in clinic today, the results from Monday's blood test (the T-cell engraftment) are still pending. All looks good with her so far, she is acting fine, eating/drinking great, and no signs of GVHD!!
Our days have been long. With the weather getting colder and cold & flu season here, we stay inside. We spend our days practicing songs, clapping, waving, walking, and the famous "How big is Ava? So big!"  She is so much fun, we enjoy every second with her...until bedtime. Then it's no fun. This crib training is hard! She used to love her crib, but now its a nightmare.  On a good night we can put her in asleep and she will stay till 3am, then she wakes up and we bring her to our bed. At 3am we are too tired to fight it.  On a bad night (like tonight as I type this), we put her down and she wakes the second she touches the mattress. The crying and screaming begins.  We go in over and over again, and each time she falls over exhausted then wakes as we tip toe out of the room. Its enough to drive me mad. How long do I let her cry? Its hard being one parent doing this, since Drew and I are never together here we don't have each other to take turns. We end up giving in and bringing her in with us...she wins.
Drew thinks Im stressing too much over this (me? stress?), and that its not the time to worry about it, but I disagree. Will she need to sleep with us for the rest of her life? How will we ever have a babysitter? Audrey was so good for bed, Im not used to this. Its funny, I took a break from typing this to get her to sleep.  After almost 2 hours and 100 trips in and out of her room, she is finally asleep. We'll see how long this lasts...good night.

Ava practicing "so big!"