Because Ava is doing so well and because she is coming up on 6 months post transplant (wow!), they are releasing her back to Sinai Hospital. They will still need to see her at certain milestones but otherwise she no longer needs to check in with them for basic blood work and physicals. After next weeks appointment, we will be taking her back to where we started. Sinai was were she was diagnosed and we loved everyone there. Dr Wiley, who has remained in touch with me throughout all this, is so amazing...we are looking forward to seeing him again. As much as we are happy with the news about being able to go, we also are sad...Hopkins is/was our safe place. They saved our little Ava, its just so bittersweet.
Home life is the same. Ava is ALL OVER THE PLACE. She has recently started to walk (10 steps at a time), climbs on tables, knocks over chairs, jumps off the couch, and her main mission in life is to climb the stairs...she stops at nothing to do this. I stay very busy during the day chasing her around. She still fights sleep but it has gotten a tad better. We have some good nights followed by some bad nights. There is no pattern, rhyme or reason...she sometimes sleeps and sometimes doesn't. She is still super cute and seems to get cuter each day. She has 3 top teeth, 3 bottom teeth, and hair thats growing in curly...we can't get enough of her!!
I will check in again next Friday when we have more results. :)
I love all of her hair! It is growing in so much!
ReplyDeleteSo glad that y'all are doing so well and can "break up" with Hopkins! I long for the day we can go more than 5-7 days between appointments!