Feb 27th was 7 months post transplant! Actually, the 6 month mark was a big milestone but I never got around to writing, so I will acknowledge the 7 month mark on here. We had our last (sort of) visit to Hopkins 3 weeks ago and saw Dr. Chen. We thanked him and everyone else for all of their wonderful care throughout this ordeal, they were beyond amazing. We will return to Hopkins on Monday for another t-cells engraftment test, which by the way, the last results didn't drop much from the previous 30%, in fact it went up a teeny tiny bit. We were really hoping to see a significant drop in the percent, but that was not the case this past time. Dr. Chen wants to repeat the test and keep an eye on her levels. He's not too concerned at the moment, and says that there is always a chance of it dropping next time...I am so hoping for that.
Last week we had our first visit back to Sinai. It was so great seeing Dr. Wiley and all the nurses! Ava was all over the place, walking and talking...they hadn't seen her since she was 6 months old!! She had her regular blood drawn and will go back in a month. Basically, the T-cell test will always be done at Hopkins and her clinic visits will be at Sinai. Both doctors will remain in touch and involved.
Besides all the waiting for appointments and tests, Ava is thriving in every way. She loves to keep me on my toes. I do believe she is the most exhausting baby in the world. She climbs, falls, jumps, pulls hair, bites (love bites Im sure), opens doors and cabinets (that are baby proofed), puts everything in her mouth, and throughout it all she remains so huggable, kissable, and lovable. On top of all that, she still doesn't sleep well. I am aware that it's mainly because of us...we started the Ferber method 10 times but don't follow through. We are just so tired. Drew is away this weekend but we have made a pact...when he gets home, we are 100% sleep training this child!!! No if's, and's, or but's!!
Sleep or no sleep, we are enjoying Ava so much. She has such an amazing personality and loves everyone. I love watching her take things in and learn...she is exceptional.
I have so much to update on but need to utilize my moments of quiet wisely. She went down a few hours ago and will probably be up before I finish this.
Some recent pics...
No comments:
Post a Comment