Trying to explain Ava's appointments is hard because I have no idea what Im talking about. It sounds understandable when it is being explained, but then I come home and try to explain it on here and I have no clue. It sounds right, but who knows...
What I do know is that Ava's t-cells are slowly increasing and attacking Audrey's t-cells which makes for a drop in the percentage of donor cells. Apparently, this can be solved by giving Ava more of Audrey's blood (just lymphocytes) in hopes of those cells overtaking Ava's and attacking until they die off. The doctor has told me that this is done all the time, and can turn it around so that she has 100% engraftment. I asked why they didn't do this transfusion weeks ago when the result was 50/50, and the answer was...they give the body time to see what it will do on its own. In a couple of weeks, her cells could have gone in the right direction, but we know now they are slowly heading in the wrong direction. In the next 2 weeks, we need to involve little Audrey again and it breaks my heart. She is already having a hard time, still trying to get over what she has already done and now will have this. It's not just a blood draw on her part either (figures), its a 2-3 hour process of a machine that draws blood out of her, sifts through and takes only lymphocytes and then pumps her blood back into her.  An adult would be able to sit through this process, but a 4 yr old will most likely be put to sleep...I can't stand it.
If Audrey doesn't resent Ava enough already, this will do it.
Other than this result of her lymphocyte count, her other blood results are looking good. We had been warned of what they call "the 60 day slump" which is when bone marrow patients have a big drop in their counts by day 60.  We knew this would happen and we waited for it.  Its crazy how everything really does happen in the order they say. Around day 44 or so, her counts started to drop, and a couple days later they were at the lowest. Her ANC had gone from 2650, to 1830, to 830, then to 650!  We waited it out, just like they said, and on Friday her ANC was back up to 1170.  This was the same for her other counts too, they dropped some and came back up.
I had also been worried about her skin, but its not looking like GVHD. The doctor just thinks that her skin is super sensitive from her chemo.  It goes from looking normal to red and blotchy, anything she comes in contact with can be causing this.
And last but not least, she seems to be losing some weight even though her eating is going so well. She normally would be getting the majority of her calories from formula, but she still refuses. I have started to force feed the formula through a syringe, its not much but its better than none. I pin her down on the floor and squirt formula down her throat...she loves it.
So, that sums up her health and stuff. She seems to be in good spirits, and so cute crawling all over the place. She looks so different to us. The cyclosporine that she takes is known to cause hair growth on the face and body, like a peach fuzz of dark hair. She has a unibrow, and little soft hairs everywhere. I still think she is beyond precious even though she is hairy...we still love her.

I went to consignment today (I love consignment) and got rid of froggy chair. It was just getting to small for her, or she was getting to big. I will miss froggy, she LOVED that chair. I traded it in for a new and improved jumpy/exer saucer. She seems to like it so far. Whatever keeps her occupied is worth every penny!! :)